“The problem with pain is it’s so subjective,” Minkin says. We asked doctors to break down the specifics of why different types of endometriosis pain can happen and how they might present. Endometriosis can cause different types of pain.Īlthough people with this condition don’t always have symptoms, there’s a reason agonizing pain has become one of the hallmark signs of endometriosis. “Women are given the suggestion that severe pain…is normal.” This normalization means that, in some cases, doctors don’t accurately diagnose or treat people with endometriosis until they’ve been dealing with the condition, and often its characteristic pain, for far too long. “It is my experience that pelvic pain is normalized by some medical providers,” Simpson says. There’s another incredibly relevant and upsetting reason that endometriosis can take years to diagnose. Sometimes endometriosis is misdiagnosed as conditions like irritable bowel syndrome or pelvic inflammatory disease, the Mayo Clinic says. Sometimes doctors will hold off on a laparoscopy and try to diagnose based on symptoms and other lab tests. Endometriosis can only be definitively confirmed via minimally invasive surgery known as laparoscopy, “where we actually look inside under anesthesia using a small telescope to visualize endometriosis implants throughout the pelvis,” Alyssa Dweck, M.D., a gynecologist in New York City, tells SELF. “There are several reasons for this,” Simpson says. What’s more, symptoms can get worse with time, and it typically takes years to get an accurate diagnosis, as SELF previously reported. Trying to live your life while juggling these signs of endometriosis can be overwhelming.
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